Being a live kidney donor

On 21st February I donated one of my kidneys to my sister. Just over 2 weeks on and everything is going well for both of us.

It has been almost a year since we found out my sister would need a kidney donation and when we found out I knew I wanted to get checked to see if I was compatible. There was no hesitation, it’s what big brothers are there to do at the end of the day.

Fortunately all the tests proved I was a suitable match. I had numerous blood tests, a CT scan, pee tests, X-Rays, an ECG, a nuclear dye injection and scan (can’t remember the name of that one) and various examinations. I should probably be glowing due to the amount of radiation I’ve had directed at me.

So all tests proved positive and my kidney was an excellent match. Finally the day of going into hospital arrived after one previous delay and we ‘checked in’ to St Georges hospital in Wimbledon, London. I have to admit to not liking hospitals, but the staff on Bucklands Ward were excellent. Not an unhappy face in sight and all very bubbly and just a bit crazy. An X-Ray and ECG out the way and it was time to put the sexy stockings on that are meant to reduce the chance of DVT (Deep Vein Thrombosis) and try and settle in.

The operation was due at 8.30am on Wednesday morning so we had a night in hospital before the op. All the way through the tests I had not felt nervous, scared or any anxiety towards the op. I don’t know why, maybe because I knew I was helping my sister. I referred to the op as being sliced and diced to anyone that it came up in conversation with and I was always optimistic about it.

After a restless nights sleep, because the hospital ward was too warm and the bed wasn’t long enough for my lanky 6′4″ frame, it was time to be sliced and diced. I was wheeled off to the operating room and into the room where they knock you out (not with a hammer). I don’t remember having to count down once I had the inital injection, I just remember the room going a bit blurry. Now some people say you have the best dreams while under a general anaesthetic, but I don’t remember a thing. I rarely remember my dreams anyway. I woke up after the op in the recovery room and spotted my sister asleep, the surgeons wandered round and said everything had gone really well. So I went back to sleep.

Now, for those of you that don’t know what happens in this type of operation, here is a very unscientific break down.

First I went in to the operating theatre. The technique they use for removing the kidney, providing it only has one main blood vessel going to it, is almost entirely keyhole. There are three incisions made for the keyhole equipment which is a camera, an ultrasonic scalpel thingy and a hook or grabby type thing for moving stuff out the way and assisting with the cutting and sewing up. All very clever. To get the kidney out, an incision is made on my belt line below, about 4 inches below my belly button and about 4 inches long. This is where they take the kidney out from. Considering where the kidney is positioned in the body, it is quite a clever way of doing it. It’s done this way as this position for the main incision causes the least pain in recovery. All good stuff.

When they are happy that my kidney can be removed and is ok to be removed, my sister, in the next operating theatre is opened up, ready to receive the kidney (one careful owner). Now, this is the thing that people don’t realise. They don’t remove any of my sister’s kidneys even though they don’t work and they add the new one in behind her pelvis and plumb it in there. The reason for this is that the pelvis acts as protection for it, it’s easily accessible for the operation and if there are complications further down the line, it’s easy to get to should it need removing or other work done to it. So now my sister has three kidneys, although it’s only really the new one that is doing anything.

So with both procedures complete we are sewn up and that’s it. As my procedure was keyhole, it meant recovery time was minimal. I was actually walking about the morning after the op. I was disconnected from the drip and pee bag and was able to move about. Quite amazing really. There was no real pain so I didn’t even need any pain relief, just the odd paracetamol which don’t really do a great deal anyway. My sister took a little longer to recover as her op was a little more involved, and she had a lot of discomfort initially as she couldn’t get comfortable, but all the tests were very positive and everything was performing as it should.

Friday came and that was the day I was allowed to go home. So two days after having a kidney removed I was able to go home, have a shower, and even better, I could have a beer! Yep, as long as I was sensible, there were no reasons why I couldn’t have a beer. I wasn’t on any medication, I just had to keep drinking water to keep things flushing through.

My sister was allowed home on the Sunday after a big improvement in her comfort and being up and about. So she was home after only 4 days of having a new kidney. Amazing.

So at home, with my parents, is when the boredom really kicks in. Load of rubbish on TV as normal. I couldn’t get out and about straight away as it was still a little uncomfortable moving about. I couldn’t do any photography as the weather was rubbish and I was resisting doing any work too soon. Early nights and puzzle books passed the time along with the extended DVD trilogy version of Lord of the Rings (great films!!!) and Green Wing series 1 & 2 (the funniest thing that has been on TV in a long while).

So now it’s 2 weeks since I’ve been home (well, not my home, my parent’s home) and the discomfort has almost gone and the weather is improving and I can get out and about a little more. I’m getting back into my freelancing web work and am getting better at crosswords.

My sister is still doing fine, all tests looking very good, so hopefully it’s all been a success. There is always the risk that there might be rejection of the kidney, but for now it’s all going well and looks to be good for the future too.

I don’t feel any different than before the op, and as long as keep healthy I won’t notice only having one kidney at all….. which is nice.

If you are, or someone you know is, about to go through this procedure, I am happy to share my thoughts and experience, so just ask. I’m sure my sister will too. As everyone keeps saying to me, it’s a great thing to be able to do for a member of your family or a friend (you don’t have to be related to donate a kidney). I just see it as something I was able to do, and was glad to be able to do it.

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10 Comments to 'Being a live kidney donor'

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  1. Kat said,

    I am considering being a live donor for a member of my church. I have never considered doing something like this before, but feel driven to help this family. I know if anyone in my family needed help I Would do it in a heart beat! Right now my biggest concerns are a benign heart valve condition that causes me to have an irregular heart beat under anesthesia and gaining 100% support form my family members. I feel like God has given me two kidneys, they really aren’t mine, they are his, so I should help
    this family if I am able.

  2. Garry said,

    Hi Kat, I would find out about the heart condition first and whether that is going to prevent you being a live donor. It may be ok though, I’m no doctor :)
    It’s a great thing to do for someone, just try and gather as much info as possible beforehand so you are fully aware of what goes on and more importantly what risks are involved.

  3. Cyn said,

    Well, I am a match to give a kidney to my father and I am wondering what type of physical activity can you do or that you have done? Would you be able to run a marathon if you wanted?

  4. Garry said,

    Hi Cyn, to be honest, I don’t feel any different to before the operation, so for me as the donor I could do anything I could do before the op…. except donate a kidney of course :-)

    For the recipient, having an extra kidney means you have to be a bit careful of contact sports etc as the new kidney is not as well protected… but running a marathon, yeah, if you could do it before, you will be able to do it after :)

  5. Voke said,

    I was recently tested as a match for my brother. The challenge now is he’s in America and I’m in England. The America doctors are concerned about potential blood clot especially as I would have to do a 9hours flight back. Also, I need 12 weeks and getting this time off work means no pay and I’m concerned about this i.e. financial side of things. Is there any insights some can give me on this. Also as a donor do you get any after effect like gastro discomforts?

  6. Garry said,

    Hi Voke. This is a tricky one, and I would like to point out that I am not expert on the subject. The financial side is the most tricky, have you spoken to your hospital advice place about it? Are you a UK resident or just working over here? As for the flight back, yes that is a risk, maybe you could get a few weeks over there to get over the op (it didn’t take me long, but that was just me) then fly back?
    As for any problems, not noticed a thing, and even forget I’ve done it sometimes.

  7. Jackie Ford said,

    Just to say that I donated a kidney to my dad on 14 August 2008 at the Churchill Hospital in Oxford. Dad was on CAPD for 18 months and I couldn’t bear the thought of him going through dialysis every 4 hours, 7 days a week until a cadaveric kidney became available. I made up my mind to donate in March 08 and following the necessary tests, Dad and I were given a provisional date.

    I can honestly say that it was the right thing to do and have been overwhelmed by the kind words of support from family and friends. We can all look forward to the future with anticipation rather than trepidation.

  8. Garry said,

    Congrats Jackie, I hope your recovery is as swift as mine was and I hope your Dad starts benefiting soon too. The improvements my sister saw were great and made it worth while.

  9. Rajaa said,

    Hi Gary
    Glen has been diagnosed with acute renal failure on July 1st after a routine check up. He has been on HD at Saint Georges hospital in Tooting ever since ( I believe it’s the same hospital where you have been operated) I have offered to donate my kidney and should be starting the tests in a couple of weeks time. I am not worried about the procedure but would really like to talk to you about it if possible as it would be in the same hospital
    Let me know

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